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A technical solution to improving palliative and hospice care.

Michael A Kallen¹, DerShung Yang, Niina Haas

¹Department of General Internal Medicine, The University of Texas MD Anderson Cancer Center, P.O. Box 301402, Houston, TX 77230-1402, USA. makallen@mdanderson.org

Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer

|January 18, 2011

Summary

A new software prototype enhances palliative care by improving patient symptom reporting and communication. This tool boosts care quality and efficiency for both patients and providers in hospice settings.

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Area of Science:

Palliative Care and Hospice Medicine
Health Informatics
Human-Computer Interaction

Background:

Palliative and hospice care require efficient patient symptom reporting and communication to improve care quality.
Current systems often present challenges in documentation workload and data accessibility for providers.
Integrating patient-reported outcomes (PROs) can enhance clinical decision-making and patient engagement.

Purpose of the Study:

To develop a user-friendly, electronic medical record-compatible software prototype for palliative and hospice care.
To improve patient symptom status reporting, symptom management, and communication.
To reduce provider documentation workload and enhance operational efficiency.

Main Methods:

A user-centered design approach guided prototype development through iterative feedback.
Needs and initial usability were assessed via interviews with eight providers and 18 patients/caregivers.
A subsequent usability test involved 18 patients/caregivers and 9 providers to evaluate the prototype's design and usefulness.

Main Results:

100% of patients/caregivers found the prototype usable, facilitating communication, shared decision-making, and self-management.
100% of patients/caregivers would try and recommend the system.
100% of providers reported improved use of patient assessments, better identification of outcome relationships, and enhanced monitoring; 88.9% noted improved operational efficiency and care quality.

Conclusions:

An effective assessment, evaluation, and communication tool can significantly improve palliative and hospice care quality and operational efficiency.
The developed electronic tool represents a viable solution for enhancing these aspects of care.
Future work will focus on refining usability and integrating the tool across diverse hospice and palliative care settings.