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Discharge planning for palliative care patients: a qualitative analysis
Emma Benzar1, Lissi Hansen, Anna W Kneitel
1Oregon Health & Science University, School of Medicine, Portland, Oregon, USA.
Journal of Palliative Medicine
|January 20, 2011
Summary
Hospital palliative care teams (PCTs) often end care after discharge, leaving patients and families unsupported. This study explored patient and caregiver experiences to improve post-hospital palliative care transitions.
Area of Science:
- Palliative Care
- Health Services Research
- Patient Discharge
Background:
- Hospital-based palliative care teams (PCTs) offer crucial support for terminally ill patients and families.
- Care gaps emerge post-discharge as PCTs often cease active involvement, impacting patient quality of life and caregiver support.
- Current discharge planning inadequately addresses the needs of palliative care patients and their families.
Purpose of the Study:
- To explore the healthcare experiences of patients and family caregivers after hospital discharge following palliative care consultation.
- To identify how PCTs can better prepare patients and caregivers for the transition from hospital to home.
- To inform the development of improved post-hospital palliative care strategies.
Main Methods:
- Qualitative study exploring patient and family caregiver experiences.
- Semi-structured interviews to gather in-depth insights.
- Analysis of healthcare experiences and support needs post-discharge.
Main Results:
- Patients and caregivers reported significant challenges in symptom management and coordination of care after discharge.
- Lack of continuity in palliative care services led to increased patient distress and caregiver burden.
- Participants expressed a need for proactive communication and tailored support from PCTs regarding post-hospital care.
Conclusions:
- There is a critical need for enhanced discharge planning and continuity of care for patients receiving palliative consultations.
- PCTs should develop strategies to actively support patients and caregivers beyond the hospital setting.
- Improved transitional care models are essential to ensure sustained quality of life and support for palliative care populations.
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