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Updated: Jun 4, 2026

Using Visual and Narrative Methods to Achieve Fair Process in Clinical Care
Published on: February 16, 2011
Shared decision-making in palliative care: a systematic mixed studies review using narrative synthesis
Emmanuelle Bélanger1, Charo Rodríguez, Danielle Groleau
1Division of Social and Transcultural Psychiatry, McGill University, Montreal, Canada. emmanuelle.belanger@mail.mcgill.ca
Patients in palliative care often desire more involvement in treatment decisions but face barriers like delayed discussions and limited options. More research is needed on shared decision-making (SDM) processes in this setting.
Area of Science:
- Palliative Care
- Health Sciences
- Medical Ethics
Background:
- Shared decision-making (SDM) is crucial in palliative care to align treatment with patient values.
- Existing literature on the SDM process in palliative care is limited.
- Understanding patient preferences for involvement is key.
Purpose of the Study:
- To synthesize current knowledge on the process of shared decision-making (SDM) in palliative care.
- To identify gaps in the literature regarding SDM in this context.
Main Methods:
- Systematic literature search across multiple databases (Medline, EMBASE, CINAHL, PsychInfo, Web of Science).
- Inclusion criteria focused on original research with adult patients in Western contexts.
- Narrative synthesis using thematic analysis, conceptual mapping, and critical reflection.
Main Results:
- Most patients desire some level of participation in treatment decisions.
- Patients frequently do not achieve their preferred involvement due to delayed decisions and undiscussed options.
- The literature specifically detailing the SDM process in palliative care is scarce.
Conclusions:
- Further research is essential to elucidate the complex, longitudinal, interactive, and interdisciplinary nature of decision-making in palliative care.
- Interventions to improve SDM processes are needed to better meet patient preferences.
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