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Clinical Practice Protocol of Creative Music Therapy for Preterm Infants and Their Parents in the Neonatal Intensive Care Unit
Published on: January 7, 2020
Neonatal end-of-life spiritual support care
Joan L Rosenbaum1, Joan Renaud Smith, Reverend Zollfrank
1Department of Pediatrics, Washington University School of Medicine, Division of Nursing and Newborn Intensive Care, St Louis Children's Hospital St Louis, Missouri 63110, USA. rosenbaum@kids.wustl.edu
Infant death profoundly impacts parents, causing grief and distress. Comprehensive care must address spiritual and existential needs alongside physical care for families facing neonatal loss.
Area of Science:
- Perinatal Medicine
- Psychology
- Spiritual Care
Background:
- Neonatal loss significantly disrupts parental relationships and quality of life.
- Parents often experience neonatal death as a spiritual and existential crisis.
- Existing care models may not adequately address the spiritual and existential needs of grieving parents.
Purpose of the Study:
- To underscore the critical need for holistic support for parents experiencing infant loss.
- To enhance practitioner awareness of spiritual and existential distress in neonatal loss.
- To offer strategies for integrating spiritual and existential care into end-of-life support for families.
Main Methods:
- Literature review on parental grief and existential distress following neonatal death.
- Analysis of current clinical practices in perinatal palliative care.
- Synthesis of recommendations for culturally sensitive spiritual and existential support.
Main Results:
- Neonatal loss is a traumatic event impacting parents' core beliefs and sense of meaning.
- Spiritual and existential distress are common but often unaddressed in clinical settings.
- Integrated care models are essential for supporting the whole family system.
Conclusions:
- Practitioners must recognize and respond to the spiritual and existential dimensions of infant loss.
- Comprehensive care should encompass the neonate's physical needs and the family's spiritual, religious, and existential well-being.
- Implementing strategies to address these needs can improve coping and reduce psychological morbidity in bereaved parents.
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