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POND4Kids: a web-based pediatric cancer database for hospital-based cancer registration and clinical collaboration
Yuri Quintana1, Aman N Patel, Paula E Naidu
1International Outreach Program, St. Jude Children's Research Hospital, Memphis, TN, USA.
Insights
The Pediatric Oncology Network Database (POND) offers a multilingual clinical database for resource-limited countries to manage pediatric cancer data. It aids cancer registration, treatment outcome tracking, and data comparison across centers.
Area of Science:
- Pediatric Oncology
- Health Informatics
- Global Health
Background:
- Limited resources in pediatric oncology units hinder effective clinical data management.
- The Pediatric Oncology Network Database (POND) was developed to address these challenges.
- POND facilitates cancer registration, data collection, and treatment outcome analysis.
Purpose of the Study:
- To introduce the Pediatric Oncology Network Database (POND) as a tool for resource-limited settings.
- To highlight POND's capabilities in managing pediatric cancer patient data.
- To demonstrate POND's role in standardizing data collection for comparative analysis.
Main Methods:
- POND is an online, multilingual clinical database.
- It provides virtual private areas for over 100 participating pediatric oncology units.
- A case study of the UNOP Guatemala Clinic's utilization of POND is presented.
Main Results:
- POND currently stores clinical data for thousands of patients.
- It enables the measurement of treatment improvement over time.
- The database facilitates uniform data collection for inter-center comparison.
Conclusions:
- POND serves as a valuable tool for pediatric oncology units in resource-limited regions.
- Ongoing challenges include data consistency, record completeness, training, and internet connectivity.
- Despite challenges, POND supports improved data management and analysis in global pediatric oncology efforts.
Abstract:
The Pediatric Oncology Network Database, POND4Kids (www.pond4kids.org, POND), is an online, multilingual clinical database created for use by pediatric oncology units in countries with limited resources to meet various clinical data management needs including cancer registration, data collection and changes in treatment outcome. Established as a part of the International Outreach Program at St. Jude Children's Research Hospital in Memphis, Tennessee, POND aims to provide oncology units a tool to store patient data for easy retrieval and analysis and to achieve uniform data collection to facilitate meaningful comparison of information among centers. Currently, POND is being used to store clinical data on thousands of patients and measure their treatment improvement over a period of time. In 2009 POND included more than 100 pediatric oncology units; each has its own virtual private area. A case study of the UNOP Guatemala Clinic's use of POND is presented. On-going challenges at partner sites include inconsistent data collection methods, missing records, training for data managers, and slow or unreliable internet connections.
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