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Published on: September 20, 2019
Home parenteral nutrition in children: procedures, experiences and reflections
C Pedrón-Giner1, C Martínez-Costa, L Gómez-López
1Division of Gastroenterology and Nutrition, Hospital Infantil Universitario Niño Jesús, Madrid, Spain.
Insights
Pediatric home parenteral nutrition (HPN) allows children to receive complex nutritional support at home, improving quality of life and reducing costs. Successful HPN requires a skilled team, careful patient selection, and family training for safe and effective care.
Area of Science:
- Pediatric nutrition
- Gastroenterology
- Home healthcare technology
Background:
- Home Parenteral Nutrition (HPN) is a complex but beneficial nutritional technology for pediatric patients.
- HPN improves quality of life and decreases healthcare costs by enabling patients to return home.
- Requires an experienced nutritional support team for successful implementation.
Purpose of the Study:
- To summarize key issues and considerations for pediatric Home Parenteral Nutrition.
- To highlight the importance of team expertise, patient selection, and family involvement.
- To discuss monitoring, potential complications, and the role of intestinal transplantation.
Main Methods:
- Summary of a think-tank meeting with pediatric Home Parenteral Nutrition experts.
- Discussion of patient selection criteria, including disease, duration, and psychosocial factors.
- Emphasis on caregiver training, safe treatment administration, and close monitoring.
Main Results:
- HPN enables recovery and intestinal adaptation in many pediatric cases.
- Caregiver training and adherence are crucial for treatment safety and effectiveness.
- Early referral for intestinal transplantation may be necessary for complicated cases.
Conclusions:
- Pediatric Home Parenteral Nutrition is a viable option for improving patient outcomes and reducing healthcare burden.
- Successful HPN hinges on multidisciplinary team expertise, thorough patient/family assessment, and robust training.
- Proactive management of complications and timely consideration of advanced interventions like intestinal transplantation are vital.
Abstract:
This document summarizes the issues raised in a think-tank meeting held by professionals with expertise in pediatric Home Parenteral Nutrition. This nutritional technology enables patients to return home to their family and social environment, improves their quality of life and decreases health-care costs; however, it is complex and requires an experienced nutritional support team. Patient selection is normally made according to their underlying disease, the estimated duration of support and family and social characteristics. The patient''s family must agree to take on caregiver's responsibilities and should be able to perform treatment safely and effectively after receiving proper training from the nutritional support team. Close monitoring must be carried out to ensure tolerance and effectiveness of nutritional support, thereby avoiding complications. This nutritional treatment achieves, in most cases, recovery and intestinal adaptation in varying periods of time. In certain diseases, and when home parenteral nutrition becomes complicated, intestinal transplant may be recommendable, so referral to rehabilitation units and Intestinal Transplantation should be made early on.
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