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Specialized Pediatric Growth Charts For Electronic Health Record Systems: the example of Down syndrome

S Trent Rosenbloom1, Tracy L McGregor, Qingxia Chen

  • 1Departments of Biomedical Informatics.

AMIA ... Annual Symposium Proceedings. AMIA Symposium
|February 25, 2011
PubMed

Insights

This study presents a method for creating specialized growth charts for children with Down syndrome, enabling better integration into electronic health record systems for improved growth monitoring.

Area of Science:

  • Pediatric Health
  • Medical Informatics
  • Genetics

Background:

  • Electronic health record (EHR) systems commonly use growth charts for pediatric care.
  • Existing growth charts do not adequately serve subpopulations with unique growth patterns, like children with Down syndrome.
  • Lack of standardized, implementable growth charts hinders monitoring for specific pediatric groups.

Purpose of the Study:

  • To develop an approach for generating subpopulation-specific growth charts.
  • To create gender-specific weight growth curves for children with Down syndrome.
  • To ensure generated charts meet EHR implementation standards.

Main Methods:

  • Generated gender-specific growth curves using weight data from 331 pediatric patients with Down syndrome.
  • Collected 2358 weight measurements between July 2001 and March 2005.
  • Formatted data tables and printable curves according to Centers for Disease Control and Prevention (CDC) growth chart standards.

Main Results:

  • Successfully generated computable data tables and printable growth curves for children with Down syndrome.
  • The generated data adheres to established growth chart standards for EHR integration.
  • Provided a practical solution for monitoring growth in this specific pediatric subpopulation.

Conclusions:

  • The described approach enables the creation of EHR-implementable growth charts for pediatric subpopulations.
  • This methodology facilitates accurate growth monitoring for children with Down syndrome.
  • The generated data and charts support healthcare providers in clinical decision-making for children with Down syndrome.

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