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Published on: December 31, 2017
International spinal cord injury female sexual and reproductive function basic data set.
M S Alexander1, F Biering-Sørensen, S Elliott
1Renown Rehabilitation Hospital, Reno, NV 89509, USA. spinalcordmd@live.com
Spinal Cord
|March 9, 2011
Summary
A new International Spinal Cord Injury (SCI) Female Sexual and Reproductive Function Basic Data Set was developed to standardize data collection for women with SCI. This comprehensive set ensures consistent reporting of sexual and reproductive health information.
Area of Science:
- Reproductive Health
- Spinal Cord Injury Research
- Clinical Data Standards
Background:
- Sexual and reproductive function are critical components of health for women with spinal cord injury (SCI).
- Standardized data collection is essential for understanding and addressing the unique challenges faced by women with SCI in these areas.
- Existing data collection methods lack uniformity, hindering comparative research and clinical practice improvements.
Purpose of the Study:
- To establish the International SCI Female Sexual and Reproductive Function Basic Data Set.
- To create a standardized tool for collecting minimal, comparable data on female sexual and reproductive function after SCI.
- To facilitate research and improve clinical care for women with SCI.
Main Methods:
- Development by an international working group with representatives from key SCI organizations (ISCoS, ASIA).
- Iterative review and comment process involving committees, organizations, and the public.
- Final data set approved by ISCoS and ASIA, with specific design for uniform data collection.
Main Results:
- The data set includes variables such as interest in sexual issues, SCI-related sexual dysfunction, arousal, orgasmic function, and menstruation.
- Specific instructions, data sheets, and training cases are available online.
- The designed variables and response categories promote comparable minimal data collection.
Conclusions:
- The International SCI Female Sexual and Reproductive Function Basic Data Set provides a standardized framework for research and clinical practice.
- Implementation of this data set will enhance the understanding and management of sexual and reproductive health in women with SCI.
- Availability of resources supports consistent application of the data set globally.
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