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Published on: September 19, 2019

Social challenges for children with hemophilia: child and parent perspectives

Kelly A Williams1, Mimi V Chapman

  • 1Department of Social Work at Appalachian State University, Boone, North Carolina 28608-2155, USA. williamska3@appstate.edu

Social Work in Health Care
|March 15, 2011
PubMed

Insights

Boys with hemophilia often feel different and try to hide their condition, impacting friendships. This chronic illness can lead to social stigma and limited peer interactions, affecting social adjustment.

Area of Science:

  • Pediatric Psychology
  • Social Psychology
  • Hematology

Background:

  • Chronic pediatric illnesses can significantly affect a child's social development.
  • Hemophilia presents unique challenges to psychosocial adjustment in school-aged boys.

Purpose of the Study:

  • To explore the impact of hemophilia on peer relationships and social adjustment in school-aged boys.
  • To understand the lived experiences of boys with hemophilia concerning their social interactions.

Main Methods:

  • Qualitative interview methods were employed.
  • Nine school-aged boys diagnosed with hemophilia participated in the study.
  • Psychosocial development literature informed the theoretical framework.

Main Results:

  • Three core themes emerged: awareness of difference, concealment of the condition, and efforts to connect with peers.
  • Hemophilia was identified as a potentially stigmatizing condition.
  • Gender-typical interactions with same-sex peers were often limited.

Conclusions:

  • Findings highlight the social challenges boys with hemophilia face.
  • Interventions are recommended to help children discuss their health condition with peers.
  • Involving friends and parents in interventions is suggested for improved social adjustment.

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