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[Difficulties experienced by children/adolescents with chronic kidney disease and by their families]

Sarah Silva Abrahão1, Janete Ricas, Darly Fernando Andrade

  • 1Coordenação de Enfermagem, Setor de Sus/Convênios/Particulares, Hospital das Clínicas, UFMG.

Jornal Brasileiro De Nefrologia
|March 31, 2011
PubMed

Insights

Home peritoneal dialysis (PD) for children with chronic kidney disease (CKD) presents challenges for patients and families. Addressing these difficulties is key to improving quality of life and dialysis success.

Area of Science:

  • Pediatric Nephrology
  • Chronic Kidney Disease Management

Background:

  • Home peritoneal dialysis (PD) is a treatment option for pediatric chronic kidney disease (CKD).
  • Understanding patient and family experiences is crucial for optimizing PD therapy.

Purpose of the Study:

  • To assess the experiences of children and adolescents undergoing home PD for CKD.
  • To identify challenges faced by patients and their families during PD treatment.

Main Methods:

  • A descriptive study involving 30 pediatric CKD patients on PD.
  • Caregiver questionnaires were used to gather data on patient and family reactions and difficulties.

Main Results:

  • Caregivers reported significant limitations in daily life due to PD for both patients and families.
  • Complaints focused on the impact of PD on quality of life and the dialysis process itself.

Conclusions:

  • Gaining insight into the lived realities of pediatric CKD patients and families is essential.
  • This knowledge can drive interventions to enhance quality of life and improve PD treatment outcomes.
Abstract

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