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A strategy for patient involvement in clinical practice guidelines: methodological approaches
P Díaz Del Campo1, J Gracia, J A Blasco
1Health Technology Assessment Unit, Agencia Laín Entralgo, Consejería de Sanidad de la Comunidad de Madrid, Spain. petra.diazdelcampo@salud.madrid.org
BMJ Quality & Safety
|April 5, 2011
Summary
A new strategy enhances patient involvement in Clinical Practice Guideline (CPG) development through consultation and participation. This approach ensures patient perspectives are integrated, leading to more patient-oriented guidelines.
Area of Science:
- Health Services Research
- Patient Engagement
- Guideline Development
Background:
- Growing trend of involving patients in Clinical Practice Guideline (CPG) development.
- Methodology of patient involvement is critical for creating patient-oriented CPGs.
- Need for a comprehensive strategy combining patient consultation and active participation.
Purpose of the Study:
- To present a strategy for robust patient involvement in CPG development.
- Strategy integrates both patient consultation and participation.
- Based on experience with four CPGs in the Spanish National CPG Development Program.
Main Methods:
- Patient consultation involves quantitative/qualitative primary research and systematic reviews of patient perspectives.
- Patient participation includes patients/representatives as equal members in guideline development groups.
- Qualitative data analysis utilized NVivo 8 software.
Main Results:
- Patients and representatives provided valuable insights on experiences, values, and preferences.
- Patients contributed to various CPG phases: scope, research questions, recommendations, patient versions, and dissemination.
- The strategy facilitated meaningful patient input throughout the CPG development process.
Conclusions:
- The proposed strategy enables patient-oriented CPG development.
- Requires training for developers in qualitative research and patient engagement techniques.
- Essential to provide support, clear roles, and training opportunities for patient participants.
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