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Updated: Jun 2, 2026

An Organotypic High Throughput System for Characterization of Drug Sensitivity of Primary Multiple Myeloma Cells
Published on: July 15, 2015
Patients' lived experience of myeloma
1Regional Oncology Haematology Day Unit, Tullamore General Hospital, Ireland. Maura.dowling@nuigalway.ie
Aim:
To explore patients' lived experience of being diagnosed with myeloma.
Method:
A hermeneutic phenomenological approach was adopted to analyse data from interviews with 11 patients diagnosed with myeloma.
Findings:
Participants described how they lived with what they described as an 'unknown cancer', and talked about their feelings of loss. They reported having an altered body image as a result of alopecia and fatigue. Fear of disease recurrence was expressed and the significance of providing support was emphasised. Participants felt lucky to be alive and lucky that myeloma is treatable.
Conclusion:
The study findings illustrate the importance of addressing patients' emotional and psychological needs, and the significance of providing support for those with myeloma.
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