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Lay people's experiences with reading their medical record
Torunn Wibe1, Ragnhild Hellesø, Laura Slaughter
1Oslo University Hospital, Center for Shared Decision Making and Nursing Research, Oslo, Norway. torunn.wibe@rr-research.no
Social Science & Medicine (1982)
|April 19, 2011
Summary
Patients reading their medical records seek control and respect, highlighting the need for improved healthcare communication. Enhanced patient-provider information exchange is crucial for better health management.
Area of Science:
- Health Services Research
- Patient Experience
- Medical Communication
Background:
- Growing patient access to medical records is a legal right.
- Understanding patient experiences with record access is essential for improving care.
Purpose of the Study:
- To explore Norwegian patients' experiences requesting and reading their hospital medical records.
- To identify patient perspectives on information exchange and its impact on health management.
Main Methods:
- Qualitative content analysis of 17 semi-structured interviews with adult patients.
- Interviews conducted between May 2008 and April 2009.
Main Results:
- Two key themes emerged: 'keeping a sense of control' and 'not feeling respected as a person'.
- Patient experiences were linked to healthcare professional communication, trust, and power dynamics.
- Patients desired a more reciprocal information exchange for health management.
Conclusions:
- Healthcare professionals need enhanced communication skills and awareness of power dynamics.
- Organizational structures may impede professionals' ability to meet patient expectations for mutuality.
- Future efforts should focus on improving information exchange to reduce patient burden.
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