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Young children with respiratory problems and assistive technology needs: a nursing care perspective
Insights
Children with respiratory issues have significant unmet assistive technology needs across all life areas. Many families desire credit options and more information, facing transportation barriers for services.
Area of Science:
- Pediatrics
- Rehabilitation Engineering
- Assistive Technology
Background:
- Children aged 0-5 with respiratory problems often have complex needs.
- Assistive technology can significantly improve quality of life for children with disabilities.
Purpose of the Study:
- To examine the technology needs of young children with respiratory problems.
- To identify unmet needs and challenges in accessing assistive technology and services.
Main Methods:
- Survey of 33 children (0-5 years) with respiratory problems.
- Assessment of technology usage versus needs across life functioning areas.
Main Results:
- All children reported unmet technology needs, particularly in daily living, communication, and mobility.
- Needs for assistive technology exceeded usage in two-thirds of functioning areas.
- Families faced challenges with credit options, pre-purchase trials, information access, and transportation.
Conclusions:
- There is a critical gap in assistive technology provision and services for young children with respiratory conditions.
- Improved access to information, financial options, and transportation is essential.
- Nurses play a key role in comprehensive service delivery for this population.
Abstract:
An examination was conducted of the technology needs of 33 children with respiratory problems ages 0-5 years as part of a larger survey of persons with disabilities. Unmet technology needs were reported for these children in all areas of life functioning. Children's needs for assistive technology exceeded their usage of equipment and devices in two thirds of the identified areas of functioning. Technology needs were critical particularly in the areas of taking care of the home; using a telephone; using a computer; talking with others; and use of specialized cars, vans, and buses. It was reported for most children that evaluations preceded the provision of assistive technology, and that families were satisfied with technology services received. More than three fourths of the families reported not having had the opportunity to purchase technology on a credit plan, with two thirds of the families showing that such an option would have been helpful to them. Also, more than one half of the children could not try their technology before it was purchased. A need for more information about assistive technology and services was reported for more than one half of these children. Lack of transportation services were reported for most children, with families of almost two thirds of the children indicating travel exceeding 50 miles to receive technology and services. Implications for nurses involved in comprehensive service delivery to these children are discussed.