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The International Tethered Cord Partnership: Beginnings, process, and status
Celene B Mulholland1, Guzmán Aranda, Luis Angel Arredondo
1David Geffen School of Medicine at UCLA, 10833 Le Conte Avenue, Los Angeles, CA 90024, USA.
Surgical Neurology International
|May 5, 2011
Summary
This study establishes the first international pediatric neurosurgical database to track outcomes for spina bifida and tethered cord. It aims to improve understanding and collaboration among global neurosurgeons.
Area of Science:
- Pediatric Neurosurgery
- Global Health
- Clinical Outcomes Research
Background:
- Spina bifida is a major cause of childhood illness in low- and middle-income countries.
- Limited research exists on spina bifida outcomes in these regions.
- The International Tethered Cord Partnership addresses this knowledge gap.
Purpose of the Study:
- Establish an international surveillance database for spina bifida and tethered cord.
- Examine the relationship between surgical timing and clinical outcomes.
- Promote international collaboration in pediatric neurosurgery.
Main Methods:
- Twelve institutions across 7 countries are participating.
- Standardized surveys assess motor, sensory, ambulation, and continence.
- Data is collected in a HIPAA-compliant database with IRB approval.
Main Results:
- 82 patients were enrolled between October and December 2010.
- Initial data collection phase completed.
Conclusions:
- This is the first international pediatric neurosurgical database of its kind.
- The project will enhance knowledge of spina bifida and tethered cord.
- It fosters international neurosurgical collaboration and discussion.
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