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Ethics in health care services for young persons with neurodevelopmental disabilities: a focus on cerebral palsy
Danaë Larivière-Bastien1, Eric Racine
1Neuroethics Research Unit, Institut de recherches cliniques de Montréal, QC, Canada.
Insights
Young individuals with cerebral palsy encounter unique ethical and social challenges in healthcare. Addressing these requires considering social context and institutional practices beyond purely biological factors.
Area of Science:
- Medical Ethics
- Social Sciences
- Disability Studies
Background:
- Cerebral palsy significantly impacts healthcare delivery for young persons.
- Ethical considerations in pediatric healthcare often overlook challenges specific to cerebral palsy.
- Social and institutional factors profoundly influence the experiences of young people with cerebral palsy.
Purpose of the Study:
- To review and discuss key ethical and social challenges faced by young persons with cerebral palsy in healthcare.
- To identify and explain often overlooked ethical issues in the care of this population.
- To emphasize the importance of nonbiological aspects in ethical healthcare delivery.
Main Methods:
- Literature review and critical discussion of ethical and social challenges.
- Analysis of contemporary medical and biomedical ethics discourse.
- Examination of the influence of social context and institutional practices.
Main Results:
- Several ethical and social challenges faced by young persons with cerebral palsy are not widely recognized in medical ethics.
- These challenges are frequently rooted in social determinants and healthcare system structures.
- Nonbiological factors are crucial for a comprehensive ethical approach.
Conclusions:
- Ethical care for young persons with cerebral palsy necessitates a broader perspective encompassing social and institutional factors.
- Contemporary medicine and ethics must better address the lived experiences shaped by societal contexts.
- Integrating social and ethical considerations is vital for improving healthcare delivery for this population.
Abstract:
In this article we review and discuss some of the key ethical and social challenges that young persons with cerebral palsy face in health care delivery. We identify and explain these challenges, some of which are rarely discussed in contemporary medicine and biomedical ethics, partly because they are not considered genuine "ethical" challenges per se. Most of these challenges are heavily shaped by broader social context and institutional practices, which highlights the importance of nonbiological aspects of the care of young persons with cerebral palsy from an ethics standpoint.
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