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The Multiple Sclerosis Performance Test (MSPT): An iPad-Based Disability Assessment Tool
Published on: June 30, 2014
Internet portal use in an academic multiple sclerosis center
A Scott Nielsen1, John D Halamka, R Philip Kinkel
1Department of Neurology, Section of Demyelinating Diseases, Beth Israel Deaconess Medical Center, Harvard Medical School, Boston, Massachusetts, USA. anielsen@bidmc.harvard.edu
Multiple Sclerosis (MS) patients use secure patient portals, but physical disability presents access barriers. Technological adaptations can improve internet accessibility for MS patients.
Area of Science:
- Health Informatics
- Neurology
- Patient Engagement
Background:
- The increasing reliance on digital health tools necessitates understanding their use among specific patient populations.
- Multiple Sclerosis (MS) patients often face physical challenges that may impact their ability to access online resources.
Purpose of the Study:
- To evaluate the utilization patterns and barriers of a secure internet patient portal within an academic Multiple Sclerosis (MS) Center.
- To identify patient characteristics and factors influencing portal adoption and usage.
Main Methods:
- A retrospective case-control chart review of 240 MS patients from 2008-2009.
- Analysis of demographic, clinical data, and portal usage metrics.
- Logistic regression to determine predictors and barriers to portal use.
Main Results:
- Portal users were typically younger professionals with less physical disability.
- Secure messaging was the most frequent feature used, primarily for medication requests and reporting side effects.
- Key predictors and barriers included number of medications, Caucasian ethnicity, arm/hand disability, and impaired vision.
Conclusions:
- Physical limitations significantly impact internet portal access for MS patients.
- Technological adaptations like voice commands and adjustable font sizes are crucial for enhancing accessibility.
- Further research should investigate the impact of portal technology on healthcare resource utilization and cost.
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