Predictive and concurrent validity of parent concern about young children at risk for autism

Christine Reiner Hess1, Rebecca J Landa

  • 1Center for Autism and Related Disorders, Kennedy Krieger Institute, 3901 Greenspring Avenue, Baltimore, MD 21211, USA.

Insights

Parental concerns about child development are common, especially for younger siblings of children with autism. Communication issues were the most frequent concern, predicting autism outcomes.

Area of Science:

  • Developmental Psychology
  • Autism Spectrum Disorder (ASD) Research
  • Pediatric Health

Background:

  • Early identification of developmental differences in siblings of children with autism is crucial.
  • Parental concerns offer valuable insights into potential developmental trajectories.
  • Understanding the predictive value of parental concerns versus clinical assessments is key.

Purpose of the Study:

  • To prospectively examine parental concerns regarding child development in siblings of children with autism.
  • To compare the predictive accuracy of parental concerns versus standardized tests for ASD outcomes.
  • To identify specific developmental domains where parental concerns are most informative.

Main Methods:

  • Longitudinal prospective study of 89 younger siblings of children diagnosed with autism.
  • Data collected at 14, 24, and 36 months of age.
  • Parental concerns and standardized developmental assessments were utilized.

Main Results:

  • High rates of parental concern (40-75%) were reported across all ages.
  • Parental concerns were significantly higher at 24 and 36 months for children with ASD outcomes.
  • Communication concerns were the most frequently reported parental concern.
  • Parental communication concern predicted ASD outcomes at 24 and 36 months, but standardized tests showed greater predictive value overall.
  • Parental concern demonstrated better specificity than sensitivity for impairment classification.

Conclusions:

  • Parental concerns, particularly regarding communication, are valuable indicators in monitoring high-risk siblings.
  • Close monitoring of siblings of children with autism is warranted due to persistent developmental concerns.
  • Standardized developmental assessments remain the primary tool for predicting ASD outcomes.

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