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Children with high and intermediate imperforate anus: their experiences of hospital care

Maria Ojmyr-Joelsson1, Björn Frenckner, Per-Anders Rydelius

  • 1Pediatric Surgery Unit, Department of Women's and Children's Health, Astrid Lindgren Children's Hospital, Karolinska Institutet, Stockholm, Sweden. maria.ojmyr-joelsson@karolinska.se

Pediatric Surgery International
|May 19, 2011
PubMed

Insights

Children with imperforate anus (IA) generally had positive hospital experiences but desired clearer information about their care. Their perspectives are crucial for improving treatment for this congenital condition.

Area of Science:

  • Pediatric Surgery
  • Child Health Services Research
  • Congenital Anomaly Research

Background:

  • Imperforate anus (IA) is a congenital condition requiring complex medical interventions.
  • Understanding the patient experience is vital for improving healthcare delivery.
  • Children with high and intermediate IA face unique challenges during hospital care.

Purpose of the Study:

  • To investigate the hospital care experiences of children with high and intermediate imperforate anus (IA).
  • To compare the experiences of children with IA to those of their peers without the condition.

Main Methods:

  • A cohort of 25 children (9 boys, 16 girls) aged 8.0-13.6 years with high/intermediate IA participated.
  • Self-report questionnaires using a 5-point Likert scale were administered.
  • Two control groups were included for comparative analysis.

Main Results:

  • Children with IA reported generally positive experiences with hospital care.
  • However, they expressed lower satisfaction with the information received.
  • Understanding of hospital visit rationale was also lower compared to control groups.

Conclusions:

  • Despite invasive treatments, children with IA perceive their care positively.
  • There is a significant need for improved information provision tailored to children with IA.
  • Incorporating children's perspectives is essential for advancing specialized care for congenital defects.
Abstract

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