Related Experiment Video
Updated: Jun 1, 2026

Continuous Manual Exchange Transfusion for Patients with Sickle Cell Disease: An Efficient Method to Avoid Iron Overload
Published on: March 14, 2017
Growing up with sickle cell disease: a pilot study of a transition program for adolescents with sickle cell disease
Grant M Smith1, Vivian R Lewis, Elaine Whitworth
1Trinity College, Duke University, Durham, NC, USA.
Abstract:
We implemented the Duke Sickle Cell Disease (SCD) Transition Program for adolescents with SCD and investigated the knowledge about SCD; concerns and emotions about transitioning; and the initial impact of the Transition Program. Thirty-three adolescents participated in the initial study. Gaps in knowledge included ethnicities affected by SCD and inheritance of SCD. Adolescents were primarily concerned about transferring to a new medical team. There was a mix of both positive and negative emotions that varied over time. Overall, we have identified educational gaps and concerns and emotions about transitioning, which we will address through the Duke SCD Transition Program.
Related Concept Videos
iPS Cell Differentiation
Bone Marrow Sampling and Transplants
The transplant begins with high doses of chemotherapy and radiation treatment, which aim to destroy the...
Cystic Fibrosis: Management
Sinus disease and chronic sinusitis...
Kidney Transplant III: Nursing Management
Longitudinal Research
Case Studies