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How is advance care planning conceptualised in Australia? Findings from key informant interviews
1Centre for Primary Health Care and Equity, School of Public Health and Community Medicine, University of New South Wales, AGSM Building, Sydney, NSW 2052, Australia. j.rhee@unsw.edu.au
Objective:
Advance Care Planning (ACP) has been gaining prominence as an important component of good end-of-life care. This study explored how ACP is conceptualised by stakeholder organisations and clinicians involved in aged care and end-of-life care in Australia, in particular their views on the aim, appropriate context and settings for ACP, and how ACP should be facilitated.
Participants:
Twenty-three participants including expert clinicians and representatives of government organisations, professional societies, consumer groups and other organisations involved in aged care and end-of-life care.
Design:
Qualitative descriptive analysis of semi-structured telephone interviews.
Results:
Most participants viewed ACP as an ongoing process aimed at enhancing an individual's autonomy and ensuring good end-of-life care. However, there were significant differences in how this process was conceptualised. Some viewed ACP as a process undertaken by patients to define and communicate their treatment preferences. Others viewed ACP as discussions undertaken by health professionals to gain a better understanding of the patient's values and goals in order to provide good care.
Implications:
Our findings highlight significant differences in how ACP is conceptualised in Australia. A shared conceptualisation and agreement on purpose is needed to ensure a successful implementation of ACP in Australia.
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