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Updated: Jun 1, 2026

Setup and Execution of the Rapid Cycle Deliberate Practice Death Notification Curriculum
Published on: August 5, 2020
[How to discuss death with children and families?]
1Institut Curie, département d’oncologie pédiatrique, unité de psycho-oncologie, 26, rue d’Ulm, 75248 Paris Cedex 05, France. etienne.seigneur@curie.net
Insights
Effective communication is crucial for pediatric palliative care professionals. Open dialogue with children and families facing end-of-life care builds trust and eases the grieving process.
Area of Science:
- Pediatric Oncology
- Palliative Care
Context:
- Caring for children and adolescents in palliative stages presents unique challenges for healthcare professionals in pediatric onco-hematology.
- Effective communication is vital for providing quality care and maintaining trust with patients and families.
Purpose:
- To explore the importance of communication in pediatric palliative care.
- To support healthcare professionals in navigating end-of-life discussions with children, adolescents, and their families.
Summary:
- Open and honest communication helps families understand the child's prognosis and impending death, facilitating discussions about end-of-life preferences.
- Allowing children and adolescents to express their feelings and questions reduces loneliness and fear, respecting their individual pace of understanding.
- Providing support for siblings is an essential component of comprehensive palliative care.
Impact:
- Improved patient and family experience during end-of-life care.
- Enhanced trust and therapeutic relationships between healthcare providers, patients, and families.
- Better preparation for the child's death and support for the entire family unit.
Abstract:
Taking care of a child or an adolescent in palliative stage is a testing work for health professionals in paediatric onco-hematology. The communication with the child at the end of life and his family is delicate but however essential to ensure quality cares while supporting trust. The continuation of a genuine relation and a regular information concerning the child's health help the parents to progressively understand the lack of possible cure and the future death of their child. This anticipation also allows to possibly discuss about conditions and place of death of the ill child or adolescent. The child or adolescent himself at the end of life can also feel the need for speaking about his situation. It is then for the adult, parent or health professional, to share with him his questionings and his possible worries in order to reduce his loneliness and his fears. To let be guided by the child allows to respect his progression and his wish to know more about it or not. Finally a support must also be offered for the siblings.
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