Related Experiment Video
Updated: May 31, 2026
Digital Home-Monitoring of Patients after Kidney Transplantation: The MACCS Platform
Published on: April 12, 2021
Empowerment of patients over their personal health record implies sharing responsibility with the physician
Catherine Quantin1, Eric Benzenine, Bertrand Auverlot
1Inserm, U866, Univ de Bourgogne, Dijon, France. Catherine.quantin@chu-dijon.fr
Abstract:
Through this article, we point out the unavoidable empowerment of patients with regard to their personal health record and propose the mixed management of patients' medical records. This mixed management implies sharing responsibilities between the patient and the Medical Practitioner (MP) by making patients responsible for the validation of their administrative information, and MPs responsible for the validation of their patients' medical information. We propose a solution to gather and update patients' administrative and medical data in order to reconstitute patients' medical histories accurately. This method is based on two processes. The aim of the first process is to provide patients administrative data, in order to know where and when they received care (name of the health structure or health practitioner, type of care: outpatient or inpatient). The aim of the second process is to provide patients' medical information and to validate it under the responsibility of the MP with the help of patients if needed. During these two processes, the patients' privacy will be ensured through cryptographic hash functions like the Secure Hash Algorithm, which allows the pseudonymization of patients' identities. The Medical Record Search Engine we propose will be able to retrieve and to provide upon a request formulated by the MP all the available information concerning a patient who has received care in different health structures without divulging the patient's true identity. Associated with strong traceability of all access, modifications or deletions, our method can lead to improved efficiency of personal medical record management while reinforcing the empowerment of patients over their medical records.
Insights
This study proposes a mixed management approach for patient medical records, empowering patients and sharing validation responsibilities with medical practitioners. This enhances personal health record management and patient control.
Area of Science:
- Health Informatics
- Medical Record Management
- Patient Empowerment
Background:
- Current patient medical record systems often lack comprehensive data integration.
- Patients desire greater control and involvement in managing their health information.
- Fragmented health data hinders accurate and efficient medical history reconstruction.
Purpose of the Study:
- To propose a novel mixed management system for patient medical records.
- To enhance patient empowerment by sharing responsibilities for record validation.
- To improve the accuracy and accessibility of patient medical histories.
Main Methods:
- A two-process approach for gathering and validating administrative and medical data.
- Utilizing cryptographic hash functions (e.g., Secure Hash Algorithm) for patient pseudonymization and privacy.
- Developing a Medical Record Search Engine for secure retrieval of patient information.
Main Results:
- Accurate reconstitution of patient medical histories through shared data validation.
- Ensured patient privacy via pseudonymization techniques.
- Efficient retrieval of comprehensive patient data for medical practitioners without compromising identity.
Conclusions:
- The proposed mixed management system enhances personal medical record efficiency.
- This approach significantly reinforces patient empowerment over their health data.
- Improved data accuracy and accessibility benefit both patients and healthcare providers.
Related Concept Videos
01:23Ethical Standards II
Nurses are entrusted with upholding various ethical principles and standards. Nurses forge solid therapeutic relationships using trust, empathy, autonomy, confidentiality, and professional competence.
Confidentiality is crucial, embodying respect for individual privacy and...
01:19Standards of Care II
01:25Ethical Standards I
The Code of Ethics provisions outline the nurse's duty to the patient, the healthcare team, the profession, and society. The Code's fundamental principles include advocacy,...
01:13Patient-centered Care
01:06Legal Guidelines for Documentation
01:09Accountability and Responsibility of a Nurse II
For example, a nurse demonstrating respect and compassion might listen attentively to a patient's concerns, provide comfort...