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E-Patient Counseling Trial (E-PACO): Computer Based Education versus Nurse Counseling for Patients to Prepare for Colonoscopy
Published on: August 1, 2019
Feasibility, acceptability, and usability of web-based data collection in parents of children with cancer
Kimberly A Pyke-Grimm1, Katherine P Kelly, Janet L Stewart
1Rady Children's Hospital, San Diego, CA, USA. kimpgrimm@gmail.com
Purpose/Objectives:
To determine the feasibility of Web-based, multisite data collection using electronic instruments and the feasibility, acceptability, and usability of that data collection method to parents of children with cancer.
Design:
Prototype development and feasibility study.
Setting:
Three Children's Oncology Group centers in the United States.
Sample:
20 parents of children with cancer who made a treatment decision within the previous six months.
Methods:
Eight instruments were translated from print to electronic format and deployed using a secure Web-based server. Parents completed printed versions of two of the instruments to assess comparability of the two formats. A post-survey interview focused on parents' computer experiences and the acceptability and ease of use of the instruments.
Main Research Variables:
Time to orient parent to Web site, time to complete instruments, investigators' field notes, and postsurvey questionnaire.
Findings:
Eighty percent of parents preferred the Web-based data collection and found it at least as easy as completing paper-and-pencil instruments. All parents, regardless of their computer expertise, were comfortable with the electronic data collection system. Statistical analysis demonstrated no evidence of systematic or clinically significant bias.
Conclusions:
The Web-based data collection was feasible, reliable, and preferred by most study participants. The authors will use this strategy in future intervention trials of parents making treatment decisions.
Implications For Nursing:
Web-based data entry is feasible and acceptable to parents of children with cancer. Future multicenter collaborative studies should develop and test nursing interventions to support parents making treatment decisions.