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Quality of life in children with epilepsy
Anju Aggarwal1, Varsha Datta, L C Thakur
1Department of Pediatrics, University College of Medical Sciences, Delhi, India. aanju67@gmail.com
Insights
Quality of life in epileptic children is influenced by age, epilepsy type, and seizure frequency. While older children showed better energy and attention, younger children had higher self-esteem.
Area of Science:
- Pediatric Neurology
- Quality of Life Research
Background:
- Epilepsy significantly impacts children's overall well-being.
- Assessing quality of life is crucial for comprehensive pediatric epilepsy care.
Purpose of the Study:
- To evaluate the quality of life in children with epilepsy using a validated Hindi questionnaire.
- To identify factors affecting quality of life in this population.
Main Methods:
- A Hindi translation of the Quality of Life in Children with Epilepsy (QOLCE) questionnaire was administered to 108 children (6-15 years).
- The questionnaire covers physical, social, cognitive, emotional, and behavioral domains.
- Reliability and validity were assessed using Cronbach's alpha and Pearson correlation.
Main Results:
- The overall quality of life score was 62.62±21.32.
- Quality of life was significantly affected by age, epilepsy type, seizure frequency, and maternal education (P<0.05).
- Older children had better energy, language, and attention, while younger children exhibited higher self-esteem and lower anxiety.
Conclusions:
- The Hindi QOLCE demonstrated good reliability and validity for assessing quality of life in Indian children with epilepsy.
- Seizure frequency negatively impacted most quality of life domains, excluding stigma, attention, and energy levels.
- Age-related differences in quality of life domains highlight the need for tailored interventions in pediatric epilepsy management.
Abstract:
Quality of life was assessed in 108 epileptic children (6-15 years) using a hindi translation of Quality of Life in Children with Epilepsy (QOLCE) questionnaire. The questionnaire consist of 76 items with 16 subscales covering five domains of life: physical function, social function, cognition, emotional and behavioral well being. Overall score was 62.62±21.32. Chronbachs-a for all 13 multi-item subscales was above 0.70, indicating good internal consistency and reliability. Pearson correlation revealed good construct validity. Overall quality of life was affected by age, type of epilepsy, seizure frequency and maternal education (P<0.05). Energy levels, language and attention (P<0.05) were better in older children whereas younger children had better self esteem and lower levels of anxiety. Seizure frequency compromised all fields except stigma, attention, and energy levels (P>0.05).
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