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Applying an eMASS Customization Program as a Research Tool to Evaluate Consumer Benefits
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Is payment a benefit?

Alan Wertheimer1

  • 1Department of Bioethics, National Institutes of Health, Bethesda, Maryland, USA. wertheimera@cc.nih.gov

Bioethics
|July 6, 2011
PubMed
Summary
This summary is machine-generated.

The standard view incorrectly excludes subject payments from risk/benefit analysis. This paper advocates for the incorporation view, which respects subject autonomy and allows beneficial research protocols.

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Area of Science:

  • Bioethics
  • Research Ethics
  • Human Subject Protection

Background:

  • The standard view in research ethics posits that financial payments to subjects should not be considered benefits in risk/benefit assessments.
  • This widely accepted view lacks substantial defense in foundational ethical documents and scholarly literature.
  • Existing ethical frameworks may not adequately account for subject interests and autonomy regarding compensation.

Purpose of the Study:

  • To challenge the prevailing standard view on financial compensation in Institutional Review Board (IRB) risk/benefit assessments.
  • To propose and defend the 'incorporation view' as a more ethically sound alternative.
  • To argue that the incorporation view better aligns with principles of subject autonomy and soft-paternalism.

Main Methods:

  • Philosophical argumentation and ethical analysis.
  • Critique of the standard view in research ethics.
  • Development and defense of the incorporation view.

Main Results:

  • The standard view is inadequately defended and potentially undermines subject interests and autonomy.
  • The incorporation view is more consistent with soft-paternalist justifications for risk/benefit assessment.
  • Rejecting the standard view allows for research protocols that benefit subjects, investigators, and society.

Conclusions:

  • IRBs should reject the standard view and adopt the incorporation view for risk/benefit assessments.
  • The incorporation view enhances respect for prospective research subjects' autonomy.
  • This shift in perspective can facilitate ethically sound research that serves broader societal interests.