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What we can say: disease illiteracy
Sunil Beniwal1, Bharat Bhushan Sharma, Virendra Singh
1Department of Medicine, SMS Medical College, Jaipur.
Insights
Many patients with chronic diseases like coronary artery disease (CAD), hypertension, diabetes, COPD, and CVA lack awareness about their conditions and treatment adherence. Patient education is crucial for improving chronic disease management and outcomes.
Area of Science:
- Internal Medicine
- Public Health
- Patient Education
Background:
- Chronic diseases pose a significant global health burden.
- Effective management requires patient understanding of disease, treatment compliance, and lifestyle precautions.
Purpose of the Study:
- To assess awareness, attitude, and behavior regarding disease nature, medication compliance, and precautions among chronic disease patients.
- To identify knowledge gaps in patients attending follow-up appointments.
Main Methods:
- A cross-sectional study involving patients with diagnosed chronic diseases (CAD, hypertension, diabetes, COPD, CVA).
- Data collected via questionnaires on disease awareness, medication adherence, and lifestyle precautions.
- Study conducted over six months in a medical outdoor setting.
Main Results:
- Significant lack of awareness observed across conditions: 42.8% of CAD patients unaware of heart disease, 31% of hypertensive patients unaware of hypertension, 20.6% of COPD patients aware of COPD.
- Low medication compliance noted: 44% for CAD, 35.8% for hypertension, 52.7% for diabetes, 34.7% for CVA.
- Poor adherence to precautions: only 47.6% of hypertensive patients avoided salt, 17.2% of COPD patients remembered no-smoking advice.
Conclusions:
- Majority of chronic disease patients exhibit ignorance regarding their condition, medication compliance, and necessary precautions.
- Coronary artery disease patients showed the highest levels of ignorance.
- There is a critical need for enhanced patient education programs to improve chronic disease self-management.
Aims:
To study the awareness, attitude and behavior of patients with chronic disease in those who come for follow-up, about nature of their disease, compliance to drugs and precautions.
Patients And Methods:
Patients attending medical outdoor with a prescription documents (discharge cards, pensioner diary, prescription letter etc.) bearing diagnosis of the chronic disease in question based on standard criteria were studied for a period of six month. Patient with chronic disease completed a questionnaire containing questions about nature of disease, important precautions and compliance to the treatment.
Results:
Of the 63 coronary artery disease (CAD) patients 27 (42.8%) were not aware of having heart disease ever in the life. Twenty nine (44%) CAD patients noncompliant for medicines during last one month. Among 84 hypertensive patients only 58 (69%) knew they had hypertension and 54 (64.2%) compliant with medicine. Only 40 (47.6 %) out of 84 avoided salt in food. Though, out of 36 diabetic patients 34 (94.4%) percent knew they had diabetes, still 19 (52.7%) stopped medicine during last month. Among 29 chronic obstructive pulmonary disease (COPD) patients only 6 (20.6%) knew they had COPD and another 17(58.6%) knew they had respiratory problem. Only 5 (17.2%) COPD patients remembered the no-smoking advice. Out of 23 CVA patients 17 (74%) knew that they have paralysis and 8 (34.7%) stopped medication during last month.
Conclusion:
It is concluded that majority of patients were ignorant about their disease, importance of compliance to medicines and about precautions of the disease. CAD patients were most ignorant people among chronic patients. It emphasizes the need of proper patient education
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