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The California Prenatal Screening Program: "options and choices" not "coercion and eugenics"
Monica C Flessel1, Fred W Lorey
1Prenatal Screening Branch, California Department of Public Health, Richmond, California 94804, USA. monica.flessel@cdph.ca.gov
Summary
The California Prenatal Screening Program offers informed choices for prenatal screening and diagnosis, including for Down syndrome. It ensures comprehensive care and respects diverse patient decisions regarding genetic testing and follow-up services.
Area of Science:
- Genetics
- Public Health
- Maternal-Fetal Medicine
Background:
- The California Prenatal Screening Program, established in 1986, aims to provide accessible prenatal screening to a diverse population.
- The program ensures women receive information to make informed decisions about prenatal screening and diagnostic services.
Purpose of the Study:
- To describe the structure and function of the California Prenatal Screening Program.
- To highlight the availability of options and the diversity of choices made by women regarding prenatal screening and diagnosis.
- To emphasize the program's commitment to comprehensive care and informed decision-making.
Main Methods:
- The program offers prenatal screening tests to identify increased risk for birth defects, including Down syndrome.
- Women have the option to participate in screening, decline screening, or opt out of follow-up diagnostic services.
- Genetic counseling and diagnostic services are provided by independent medical professionals adhering to nondirective guidelines.
Main Results:
- Program data indicate that women in California utilize a wide range of choices regarding prenatal screening and diagnosis.
- The program successfully provides comprehensive care options for all pregnant women.
- Patient autonomy in decision-making regarding prenatal genetic testing is a key feature.
Conclusions:
- California's Prenatal Screening Program effectively supports informed choices and comprehensive care for diverse populations.
- Accurate communication among stakeholders is vital for the program's success and the well-being of pregnant women and individuals with Down syndrome.
- The program upholds patient rights and promotes optimal outcomes through accessible screening and diagnostic services.
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