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Issues And Trends In Healthcare Delivery System01:29

Issues And Trends In Healthcare Delivery System

The issues and trends in healthcare delivery are constantly changing. The COVID-19 pandemic is one recent issue that wreaked havoc on healthcare systems, causing a shortage of healthcare workers, high demand for medicines and supplies, and increased medical expenditure due to a lack of insurance. Other issues include rising healthcare costs and care fragmentation.
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Updated: May 30, 2026

Biobank for Translational Medicine: Standard Operating Procedures for Optimal Sample Management
08:01

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Published on: November 30, 2022

From single biobanks to international networks: developing e-governance.

Jane Kaye1

  • 1Department of Public Health, University of Oxford, Oxford, UK. jane.kaye@law.ox.ac.uk

Human Genetics
|July 26, 2011
PubMed
Summary

Future research networks require updated governance. Current national frameworks struggle with cross-border data sharing, necessitating a shift towards digital mechanisms for effective oversight and accountability in global research collaborations.

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Area of Science:

  • Biobanking and biorepository research
  • Global health data governance

Background:

  • The potential exists to link biobanks, biorepositories, and reference databases globally.
  • Emerging 'research portals' promise unprecedented access to worldwide research resources.

Purpose of the Study:

  • To argue that current research governance systems are inadequate for the demands of networked, cross-border data sharing.
  • To identify the limitations of existing national-based governance frameworks in addressing global research needs.

Main Methods:

  • Analysis of current research governance structures.
  • Examination of legal, policy, and practical challenges in cross-border data sharing.
  • Critique of the 'one researcher, one project, one jurisdiction' model.

Main Results:

  • Existing national governance frameworks are ill-equipped for international data flows.
  • National bodies often lack the legal power and expertise for complex cross-border issues like privacy and disclosure.
  • Current governance models are based on an outdated, localized research paradigm.

Conclusions:

  • The current research governance system requires significant adaptation to support networked research.
  • A transition to digital governance mechanisms is proposed as a necessary step for 21st-century research.
  • Rethinking governance is crucial for enabling secure and effective global research collaborations.