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[The daily life of children living with chronic diseases: microsystems in intersection with individual vulnerability]

Maria de Lourdes Rodrigues Pedroso1, Maria da Graça Corso da Motta

  • 1Programa de Pós-Graduação em Enfermagem da UFRGS, Porto Alegre, Rio Grande do Sul, Brasil. malupedroso@gmail.com

Revista Gaucha De Enfermagem
|August 3, 2011
PubMed

Insights

Family perceptions of environmental vulnerability significantly impact children with chronic diseases. Understanding the individual

Area of Science:

  • Pediatric Health
  • Environmental Psychology
  • Family Studies

Context:

  • Focuses on hospitalized children with chronic diseases in Porto Alegre, Brazil.
  • Examines the intersection of environmental vulnerability and child development.
  • Highlights the family's ecological environment as a crucial factor.

Purpose:

  • To explore family perceptions of environmental vulnerability.
  • To understand how these perceptions relate to children's chronic illnesses and hospitalization.
  • To analyze the individual component of vulnerability within the family microsystem.

Summary:

  • This quantitative, descriptive exploratory study analyzed data from nine families using creative activities and content analysis.
  • Three analytical categories emerged, emphasizing the family microsystem as a construct of individual vulnerability.
  • Findings indicate that individual vulnerability components influence the microsystem, highlighting the bidirectional relationship between individuals and their environment.

Impact:

  • Reinforces the importance of considering the child as both a construct and constructor of their environment.
  • Informs healthcare professionals and policymakers on holistic approaches to pediatric chronic illness care.
  • Suggests interventions addressing environmental factors to improve outcomes for vulnerable children and their families.

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