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On creating a patient-centric database from multiple Hospital Information Systems.
J Bettencourt-Silva1, B De La Iglesia, S Donell
1School of Computing Sciences, University of East Anglia, Norwich, United Kingdom. jhbs@cmp.uea.ac.uk
Collecting patient data from multiple hospital information systems (HIS) for research is challenging. This study outlines a process roadmap for retrieving and collating heterogeneous patient-centric data from HIS, crucial for clinical research and data analysis.
Area of Science:
- Health Informatics
- Clinical Data Management
- Data Mining
Background:
- Hospital Information Systems (HIS) contain heterogeneous data vital for patient care.
- Accurate data collection from electronic patient data in secondary care is essential for clinical research but often ad-hoc and poorly documented.
Purpose of the Study:
- To facilitate and expand the process of retrieving and collating patient-centric data from multiple HIS for research databases.
- To develop a process roadmap, highlighting constraints and drawbacks in secondary care settings.
Main Methods:
- Employed a combined approach using data mining, knowledge discovery methodologies, and clinical data integration.
- Included local expert consultation and a case study on prostate cancer at an NHS hospital.
Main Results:
- Successfully collected patient-centric data from multiple heterogeneous hospital sources for a prostate cancer case study.
- Collated data into a format suitable for further clinical research.
Conclusions:
- Retrieving and collating multi-source, patient-centric hospital data is a lengthy and difficult process.
- This non-trivial task requires further attention from researchers and hospital IT management to improve data accessibility for research.
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