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R Soobrah1, S K Clark

  • 1The Polyposis Registry, St Mark's Hospital, Harrow, UK. ritish@doctors.org.uk

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Summary

Finding reliable information on familial adenomatous polyposis (FAP) online is challenging. Websites often have poor readability and low reliability, necessitating a better resource for FAP patients.

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Area of Science:

  • Medical Informatics
  • Health Communication
  • Web Science

Background:

  • Familial adenomatous polyposis (FAP) is a hereditary condition.
  • Accurate online health information is crucial for patient management.
  • The internet is a primary source of health information for many individuals.

Purpose of the Study:

  • To evaluate the accessibility, reliability, and readability of online information regarding familial adenomatous polyposis (FAP).

Main Methods:

  • Searched major search engines for 'familial adenomatous polyposis'.
  • Assessed the first 50 websites using the LIDA tool for accessibility, usability, and reliability.
  • Evaluated content readability using the Flesch Reading Ease (FRE) score.
  • Checked for Health on the Net Foundation (HONcode) certification.

Main Results:

  • Only 48 of 150 potential sites were analyzed due to various exclusions.
  • Nineteen websites were HONcode-certified.
  • Mean LIDA score was 62.59% and mean FRE score was 32.9.
  • HONcode-certified sites showed marginally higher reliability scores (38.5%) compared to uncertified ones (36.2%).

Conclusions:

  • High-quality FAP information is scarce online.
  • Analyzed websites demonstrate concerningly low reliability.
  • Content readability is poor, and sites are not always prominent in search results.
  • A need exists for a clear, accessible, and authoritative FAP resource.