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Dignified death: concept development involving nurses and doctors in pediatric intensive care units
Kátia Poles1, Regina Szylit Bousso
1University Center of Lavras (UNILAVRAS), Brazil. kpoles@usp.br
Insights
This study defines dignified death for children in pediatric intensive care units (PICUs), highlighting its complexity for healthcare teams and families. Understanding these dimensions aids end-of-life care reflection.
Area of Science:
- Pediatric Intensive Care Medicine
- Bioethics
- Nursing Research
Background:
- End-of-life care in pediatric intensive care units (PICUs) presents unique ethical and clinical challenges.
- A clear conceptualization of dignified death for children is lacking in the Brazilian context.
- Healthcare professionals require a framework to navigate complex end-of-life decisions.
Purpose of the Study:
- To develop and define the concept of dignified death for children within Brazilian PICUs.
- To establish a conceptual structure for dignified death in pediatric end-of-life care.
- To inform and enhance clinical practice and ethical considerations in pediatric critical care.
Main Methods:
- Utilized the Hybrid Model for Concept Development.
- Conducted fieldwork involving in-depth interviews with healthcare professionals (nurses and physicians) in PICUs.
- Analyzed qualitative data to identify key dimensions of dignified death.
Main Results:
- Dignified death in PICUs is a complex phenomenon.
- Key aspects include multidisciplinary team decision-making.
- Child and family-centered care are integral components of dignified end-of-life experiences.
Conclusions:
- Knowledge of dignified death dimensions can foster professional reflection on values and beliefs.
- This study contributes to the theoretical and methodological development of end-of-life care in pediatrics.
- Enhancing understanding of dignified death can improve care quality for children and families at the end of life.
Abstract:
The aim of this study was to develop the concept of the dignified death of children in Brazilian pediatric intensive care units (PICUs). The Hybrid Model for Concept Development was used to develop a conceptual structure of dignified death in PICUs in an attempt to define the concept. The fieldwork study was carried out by means of in-depth interviews with nine nurses and seven physicians working in PICUs. Not unexpectedly, the concept of dignified death was found to be a complex phenomenon involving aspects related to decisions made by the multidisciplinary team as well as those related to care of the child and the family. Knowledge of the concept's dimensions can promote reflection on the part of healthcare professionals regarding the values and beliefs underlying their conduct in end-of-life situations. Our hope is that this study may contribute to theoretic and methodological development in the area of end-of-life care.
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