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Knowledge and attitudes of parents toward children with epilepsy
Angela I Frank-Briggs1, E A D Alikor
1Department of Paediatrics, University of Port Harcourt Teaching Hospital, Port Harcourt, Rivers State, Nigeria. afrankbriggs@yahoo.com
Insights
Most parents know about epilepsy, but misconceptions persist regarding its causes and management. Educating the public is crucial to improve attitudes and reduce the impact of childhood epilepsy.
Area of Science:
- Neurology
- Pediatrics
- Public Health
Background:
- Parental attitudes toward epilepsy are significantly influenced by their understanding of the condition.
- Acceptance of an epilepsy diagnosis in children can be challenging for parents.
- This study aimed to assess parental knowledge and attitudes regarding childhood epilepsy.
Purpose of the Study:
- To evaluate parental knowledge and attitudes towards children diagnosed with epilepsy.
- To identify specific areas of misconception among parents regarding epilepsy.
Main Methods:
- A prospective study was conducted in a tertiary hospital setting.
- 280 parents of children with epilepsy were recruited via a neurology clinic.
- Questionnaires were administered to assess parental knowledge and attitudes.
Main Results:
- Over 95% of parents had prior awareness of epilepsy.
- Significant misconceptions were noted, including beliefs about epilepsy being contagious or linked to supernatural causes.
- Parental knowledge regarding seizure management and the condition's characteristics was often unscientific.
Conclusions:
- While awareness of epileptic seizures is high, substantial knowledge gaps and unscientific beliefs persist among parents.
- There is a critical need for public health initiatives to disseminate accurate information on epilepsy's causes, manifestations, and management.
- Media-driven educational campaigns can help mitigate epilepsy-related morbidity and mortality.
Introduction:
The attitude towards people with epilepsy is influenced by the level of their knowledge about the condition. Parents usually do not accept the diagnosis of epilepsy in their children easily. This study was to assess 280 parents' knowledge and their attitude toward children suffering from epilepsy by answering a questionnaire.
Aim:
To evaluate the knowledge and attitudes of parents toward children with epilepsy.
Materials:
This was a prospective study in a tertiary hospital. All parents who had children suffering from epilepsy seen from April 1st 2009 to March 31st 2010 were recruited. Questionnaires were administered to all the parents who attended the neurology clinic with their children diagnosed of epilepsy.
Results:
A total of 914 neurological patients were seen and treated during the study period. Of these, 280 parents whose children suffered from epilepsy participated in the study. Almost all, 267 (95.36%) parents had heard about epilepsy prior to presentation in the clinic. Some parents thought that epilepsy was contagious and linked with evil spirit/demonic attack. A few of them rejected the word epilepsy and did not think that an epileptic child could achieve much in life. The knowledge about the clinical characteristics and initial procedures to attend a person during a seizure were unscientific.
Conclusions:
We concluded that more than 90% of parents and caregivers know about epileptic seizures. However, there is a need to disseminate more information to the public about its causes, clinical manifestation, approach to managing a convulsing child, and its outcome. In addition, periodic medical campaigns aimed at educating the public about epilepsy through the media could go a long way in reducing the morbidity and mortality associated with this disorder.
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