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Published on: February 2, 2020
Growth-related quality of life
1Göteborg Paediatric Growth Research Centre, Sahlgrenska Academy, Göteborg University, Göteborg, Sweden.
Insights
Quality of life (QoL) in children with short stature requires assessing future potential, not just current health. New QoL measures should include
Area of Science:
- Pediatric endocrinology
- Quality of Life research
Background:
- Assessing child quality of life (QoL) is complex, involving present and future factors.
- Standard health-related QoL may be insufficient for children with treatable growth problems.
Purpose of the Study:
- To highlight the inadequacy of current QoL measures for children with short stature.
- To propose a more comprehensive QoL framework for growth-related issues.
Main Methods:
- Conceptual analysis of QoL dimensions in the context of growth disorders.
- Review of existing QoL measurement limitations for pediatric short stature.
Main Results:
- Current QoL assessments often overlook future potential and long-term consequences.
- Growth problems impact not only current well-being ('being', 'belonging') but also future potential ('becoming').
Conclusions:
- QoL in children with short stature necessitates inclusion of 'becoming' aspects.
- Future QoL instruments must address long-term outcomes of growth enhancement.
Abstract:
Measuring a child's quality of life (QoL) is a complex dynamic, involving consideration of both present circumstances and future limitations. In relation to short stature, health-related QoL, with its emphasis on current health status, may be inadequate to describe QoL in children with treatable growth problems. Growth problems concern not only current physical health (being) and adaptation to the physical and social environment (belonging) but also what will happen in the future as a consequence of growth problems and the possibility of achieving the potential of the individual (becoming). These three aspects of QoL should be included in growth-related QoL in order to reflect the reduced QoL resulting from continued short stature and the potential benefit of growth enhancement. Future QoL instruments for growth-related problems should incorporate aspects of 'becoming' and the long-term consequences of growth improvement for the individual.
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