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Assessment and Evaluation of the High Risk Neonate: The NICU Network Neurobehavioral Scale
Published on: August 25, 2014
Ethical issues in neonatal intensive care
Marcello M Orzalesi1, Marina Cuttini
1Fondazione Maruzza Lefebvre D'Ovidio Onlus, Rome, Italy. m.orzalesi@maruzza.org
Insights
Limiting neonatal intensive care and shifting to palliative care can be a humane alternative when survival involves severe suffering or disability. This approach considers ethical principles and parental involvement in complex neonatal decisions.
Area of Science:
- Neonatal Medicine
- Medical Ethics
- Palliative Care
Background:
- Advances in neonatal intensive care have improved survival rates for critically ill and preterm infants.
- However, prolonged intensive care may lead to severe suffering or disabilities, posing ethical dilemmas.
Purpose of the Study:
- To examine the ethical principles guiding decisions on limiting intensive treatments in neonates.
- To discuss situations necessitating a shift from intensive care to palliative care.
- To explore the role of parents and neonatologists' perspectives in these decisions.
Main Methods:
- Review of ethical principles relevant to neonatal end-of-life care.
- Analysis of clinical scenarios where treatment limitation is considered.
- Discussion based on findings from the EURONIC study on European neonatologists' opinions.
Main Results:
- Limitation of intensive treatments and transition to palliative care can be a more humane option in specific neonatal cases.
- Ethical considerations, parental involvement, and neonatologists' views are crucial in decision-making.
- The EURONIC study provides insights into current practices and opinions across European neonatal units.
Conclusions:
- Decisions regarding neonatal intensive care limitation require careful ethical deliberation.
- A shift towards palliative care offers a compassionate alternative in cases of extreme suffering or severe disability.
- Understanding parental and physician perspectives is vital for ethical and humane neonatal end-of-life care.
Abstract:
Recent progress in neonatal care have significantly improved the prognosis and chances of survival of critically ill or extremely preterm neonates and have modified the limits of viability. However, in some circumstances, when the child's death can only be briefly postponed at the price of severe suffering, or when survival is associated with severe disabilities and an intolerable life for the child and his/her parents, the application of the full armamentarium of modern neonatal intensive care may not be appropriate. In such circumstances the limitation of intensive treatments (withholding or withdrawing) and shift towards palliative care, can represent a more humane and reasonable alternative. This article examines and discusses the ethical principles underlying such difficult decisions, the most frequent situations in which these decisions may be considered, the role of parents in the decisional process, and the opinions and behaviours of neonatologists of several European neonatal intensive units as reported by the EURONIC study.
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