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Related Concept Videos

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Patient-centered Care

Patient-centered care involves delivering care beyond inpatient hospitalization. Reflective practice can enhance a patient-centered approach. Reflective practice is a process of reasoning that considers all aspects of the present situation, including practicalities, learning from personal practice, and consideration of patient needs. Patients appreciate care decisions made while considering their input. Involving the patient in their care provides the patient with a sense of contribution rather...
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Related Experiment Video

Updated: May 28, 2026

The Dyspepsia Educational Tool As a Novel Aid in Dyspepsia Management
06:40

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HDBuzz: empowering patients through accessible education.

Edward J Wild1, Jeffrey B Carroll

  • 1Department of Neurodegenerative Disease, UCL Institute of Neurology, National Hospital for Neurology and Neurosurgery, London, WC1N 3BG, UK.

Trends in Molecular Medicine
|October 25, 2011
PubMed
Summary
This summary is machine-generated.

Patient communities drive Huntington's disease (HD) research and therapy development. HDBuzz enhances communication by providing accessible, accurate HD research updates to patients and supporters.

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Area of Science:

  • Neuroscience
  • Genetics
  • Patient Advocacy

Background:

  • Patient communities are crucial for scientific discovery, providing data and samples for novel therapy development.
  • Historically, Huntington's disease (HD) research has thrived on scientist-patient collaboration.
  • Communication gaps persist between the HD research community and patient populations.

Purpose of the Study:

  • To address suboptimal communication in Huntington's disease research.
  • To establish a reliable platform for disseminating accurate HD research findings.

Main Methods:

  • Development of the web platform HDBuzz.
  • Content creation focused on current HD research.

Main Results:

  • HDBuzz provides accessible and accurate information on HD research.
  • The platform serves patients and their supporters, bridging the information gap.

Conclusions:

  • Effective communication platforms like HDBuzz are vital for fostering collaboration between researchers and patient communities.
  • Improving information accessibility can accelerate progress in Huntington's disease research and therapeutic development.