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Related Experiment Video

Updated: May 28, 2026

Involving Individuals with Developmental Language Disorder and Their Parents/Carers in Research Priority Setting
06:16

Involving Individuals with Developmental Language Disorder and Their Parents/Carers in Research Priority Setting

Published on: June 6, 2020

Patients' and observers' perceptions of involvement differ. Validation study on inter-relating measures for shared

Jürgen Kasper1, Christoph Heesen, Sascha Köpke

  • 1Institute of Neuroimmunology and Clinical MS Research, University Medical Center Hamburg, Hamburg, Germany.

Plos One
|November 2, 2011
PubMed
Summary

Measuring patient involvement in shared decision-making (SDM) is crucial but challenging. Current SDM measures lack a unified construct, making it difficult to assess patient involvement effectively.

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Area of Science:

  • Medical decision-making
  • Evidence-based medicine
  • Patient communication

Background:

  • Shared decision-making (SDM) is vital in evidence-based medicine for informed patient choices.
  • Defining, implementing, and evaluating patient involvement in SDM remains unclear.
  • The study investigated the efficacy of four measures for indicating patient involvement.

Purpose of the Study:

  • To assess the ability of four distinct measures to accurately reflect patient involvement in medical decisions.
  • To examine the convergent validity between observer ratings and patient perceptions of communication during consultations.
  • To address the questionable assumption of overlap in constructs measured by different SDM instruments.

Main Methods:

  • A nested cohort of 79 participants from a randomized trial on multiple sclerosis immunotherapy decision aids was studied.
  • Convergent validity was assessed between observer ratings (OPTION) and patient perceptions (SDM Questionnaire, Control Preference Scale, Decisional Conflict Scale).
  • Videotaped physician-patient consultations were analyzed using the OPTION instrument.

Main Results:

  • The OPTION measure demonstrated high to excellent reliability.
  • Observer ratings (OPTION) indicated low communication performance, contrasting with high patient-reported performance.
  • No significant correlations were found between observer and patient ratings, though moderate correlations existed among patient-reported measures.

Conclusions:

  • Existing shared decision-making measures do not capture a single, consistent construct.
  • A validated gold standard is needed to reliably indicate patient involvement in clinical decision-making.
  • The heterogeneity of SDM constructs complicates the interpretation of evidence on SDM efficacy, suggesting a need for inter-subjective measurement focus.