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Lay Attitudes toward Genetic Testing for Susceptibility to Inherited Diseases.

J S Shaw¹, K L Bassi

¹Lafayette College, USA.

Journal of Health Psychology

|November 4, 2011

Summary

Public attitudes toward genetic testing for inherited diseases are optimistic but cautious. Interest in genetic testing increases with potential disease control and test accuracy, with privacy concerns regarding data access and regulation.

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Area of Science:

Genetics
Public Health
Bioethics

Background:

Population-based genetic testing for inherited diseases presents complex legal and medical policy challenges.
Understanding public attitudes is crucial for developing effective genetic testing strategies and policies.

Purpose of the Study:

To assess the general public's attitudes toward genetic testing for disease susceptibility.
To identify factors influencing personal interest in undergoing genetic testing.

Main Methods:

A mail questionnaire was administered to 226 randomly selected individuals in Easton, Pennsylvania.
The questionnaire assessed attitudes on personal and societal issues related to genetic testing.

Main Results:

Respondents expressed optimism about the benefits of genetic testing.
Interest in testing correlated with perceived control over the disease (e.g., availability of a cure) and test predictability.
Concerns were raised about data privacy, with a preference for limiting access to results to healthcare providers and family.

Conclusions:

Public opinion on genetic testing is nuanced, balancing potential benefits with significant privacy and regulatory concerns.
Findings have implications for policymakers, genetic scientists, bioethicists, and legal scholars involved in genetic testing policy development.