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Published on: March 13, 2011
American Indian/Alaska Native willingness to provide biological samples for research purposes
Melissa K Filippi1, Kristin L Young, Niaman Nazir
1Department of Preventive Medicine and Public Health, University of Kansas Medical Center, Kansas City, KS 66160, USA. mfilippi@kumc.edu
Abstract:
This article examines the willingness of American Indian/Alaska Natives (AI/AN) to provide biological samples for research purposes. Prior cases of abuse and misuse of individuals, materials, and data highlight ethical research concerns. Investigators may be hesitant to engage AI/ANs in research projects. We conducted a survey of AI/ANs in the central plains region of the US over 1 year. This convenience sample completed a series of questions on biological samples and research. Survey results (N=998) indicate that 70.15% of AI/ANs would be willing to provide saliva/spit for a specific study with the proper consent and control of samples. In conclusion, researchers should find ways to work with and for AI/ANs, assuring participant input in the research process.
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