Pattern and process in disclosure of health status by women with iatrogenically acquired hepatitis C

Thirty-two women who acquired hepatitis C through prophylactic treatment for RH Haemolytic Disease participated in discussions about their decision to disclose their health status. Spouses, the woman's birth family and close friends were the most likely confidants. Children were either very likely or very unlikely to be informed. The women told spouses, own family members, friends, children and employers and 'near' co-workers if these latter groups were informed. Divulging to 'in laws' was more likely to be done by the partner. Disclosure to people in general was more likely to happen through third parties. Organizational aspects of the health system could result in exposure. Women seeking redress because of the iatrogenic nature of the infection disclosed through the media. The consequences of disclosure were varied. The results are discussed in the light of research on disclosure by comparable populations. Disclosure emerges as a stressful process demanding constant vigilance and active management.