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The Perinatal Palliative Care Perceptions and Barriers Scale Instrument©: development and validation.

Charlotte Wool¹, Sally Northam

¹University of Texas at Tyler, USA. crwool@ycp.edu

Advances in Neonatal Care : Official Journal of the National Association of Neonatal Nurses

|November 30, 2011

Summary

This summary is machine-generated.

A new scale measures clinician views on perinatal palliative care (PPC) and obstacles to its delivery. This tool aids in developing better educational programs and support for families facing difficult diagnoses.

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Area of Science:

Perinatal medicine
Palliative care
Healthcare ethics

Background:

Perinatal palliative care (PPC) addresses the needs of families experiencing life-limiting fetal diagnoses.
Both childbirth with a life-limiting condition and termination for fetal anomaly are emotionally challenging.
Clinicians face ethical dilemmas regarding care approaches for this population.

Purpose of the Study:

To develop and validate an instrument to measure clinician perceptions of PPC.
To identify barriers hindering the delivery of quality PPC.

Main Methods:

A Delphi study with 11 experts for initial instrument development.
A computer survey administered to 264 multidisciplinary clinicians.
Exploratory factor analysis used for scale validation and data analysis.

Main Results:

The Perinatal Palliative Care Perceptions and Practice Barriers Scale was developed.
The perceptions scale (23 items) achieved 67% variance explained with Cronbach's α = 0.77.
The barriers scale (22 items) achieved 71% variance explained with α = 0.83.

Conclusions:

The developed instrument is a valid and reliable measure for clinician attitudes towards PPC.
This tool can inform educational programs and hospital planning for PPC teams.
It facilitates examination of clinician perspectives and barriers amidst increasing genetic testing and diagnoses.