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Measuring children's decision-making involvement regarding chronic illness management.

Victoria A Miller¹, Diana Harris

¹Department of Anesthesiology and Critical Care Medicine, The Children's Hospital of Philadelphia, Philadelphia, PA 19104, USA. millerv@email.chop.edu

Journal of Pediatric Psychology

|December 6, 2011

Summary

A new scale measures decision-making involvement in pediatric chronic illnesses like cystic fibrosis, diabetes, and asthma. This tool helps understand how children and adolescents transition to managing their health independently.

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Published on: August 1, 2019

Area of Science:

Pediatric Psychology
Health Psychology
Chronic Illness Management

Background:

Children and adolescents with chronic conditions (cystic fibrosis, diabetes, asthma) need to develop self-management skills.
Assessing their involvement in decision-making is crucial for understanding this transition to independence.
Existing measures may not adequately capture this construct in pediatric populations.

Purpose of the Study:

To develop and validate a reliable and valid scale measuring decision-making involvement in pediatric chronic illness.
To create a tool for assessing how children and adolescents participate in their healthcare decisions.
To inform interventions supporting the transition to independent illness management.

Main Methods:

Parent-child dyads completed the Decision-Making Involvement Scale (DMIS), locus of control, and family communication measures.
Exploratory and confirmatory factor analyses (CFA) were used to refine the DMIS item pool.
Temporal stability and construct validity of the DMIS were evaluated.

Main Results:

The parent form of the DMIS was refined to 20 items across five factors, showing an acceptable fit in CFA for both parent and child reports.
Internal consistency ranged from 0.71 to 0.91, and temporal stability was supported by moderate-substantial intraclass correlation coefficients.
DMIS subscales demonstrated associations with child age, child locus of control, and family communication.

Conclusions:

The developed Decision-Making Involvement Scale (DMIS) is a valid tool for assessing pediatric decision-making in chronic illness.
The DMIS can enhance understanding of the transition to independent illness management in young patients.
Further research should explore the impact of decision-making involvement on treatment adherence and responsibility.