Related Experiment Video
Updated: May 26, 2026

The Multiple Sclerosis Performance Test (MSPT): An iPad-Based Disability Assessment Tool
Published on: June 30, 2014
MS and me: exploring the impact of multiple sclerosis on perceptions of self
Louise Mozo-Dutton1, Jane Simpson, Julia Boot
1Division of Health Research, Lancaster University, Bowland Tower East, Lancaster, UK. louise.mozodutton @mhsc.nhs.uk
Purpose:
The aim of this qualitative study was to explore the impact of multiple sclerosis (MS) on perceptions of self as well as the emotional, social and practical implications of any self-reported changes.
Method:
Twelve participants were interviewed and interpretative phenomenological analysis used to analyse the data. Participants were recruited from a MS hospital clinic in the north-west of England.
Results:
Four themes were identified although for reasons of space and novelty three were discussed, (i) 'my body didn't belong to me': the changing relationship to body, (ii) 'I miss the way I feel about myself': the changing relationship to self and (iii) 'let's just try and live with it': incorporating yet separating MS from self.
Conclusions:
The onset of MS was seen to impact upon self yet impact did not necessarily equate with a loss of self but rather a changed self. Self-related changes did, however, carry the potential to impact negatively upon a person's mood and psychological functioning and consequently, clinicians are encouraged to consider issues relating to self as standard.
Related Concept Videos
Multiple Sclerosis l: Introduction
The Sense of Self: Reflected Self-Appraisal and Social Comparison
Understanding the Self
Understanding Self-Concept
Self-Schemas
Self-Awareness and Its Effects

