When work, family and friendship collide
Mandi Macshane1, Helen Mountain
1Familial Cancer Program, Genetic Services of Western Australia, King Edward Memorial Hospital, 374 Bagot Road, Subiaco, Western Australia 6008, Australia. Mandi.MacShane@health.wa.gov.au
Journal of Genetic Counseling
|December 14, 2011
Summary
Navigating genetic counseling for breast cancer presents unique challenges when personal and professional roles intertwine. This case study explores managing blurred boundaries during familial cancer genetic testing.
Area of Science:
- Oncology
- Genetics
- Psychosocial Support
Background:
- Familial cancer syndromes increase the risk of developing certain cancers, necessitating genetic evaluation.
- Genetic counseling plays a crucial role in assessing risk, explaining testing, and providing support for individuals and families affected by cancer.
Purpose of the Study:
- To describe the complexities and challenges encountered in familial cancer genetic counseling.
- To illustrate the negotiation of blurred professional and personal boundaries in a genetic counseling setting.
- To share insights from a personal and professional narrative involving breast cancer genetic testing.
Main Methods:
- A qualitative, narrative approach was used, drawing from a personal and professional experience.
- The case study details the process of genetic testing for a family member diagnosed with breast cancer.
- It highlights the role of the genetic counselor in navigating intersecting relationships.
Main Results:
- The case underscores the difficulties arising when a genetic counselor's professional role overlaps with personal relationships (family member, friend, colleague).
- Specific issues and strategies for managing these blurred boundaries during the genetic testing process were identified.
Conclusions:
- Managing dual roles in genetic counseling requires careful consideration of ethical and relational dynamics.
- This narrative provides a practical example of addressing boundary challenges in familial cancer genetic services.
- Effective navigation of these complexities is essential for providing comprehensive and sensitive patient care.
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