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Illustrating child-specific linking issues using the Child Health Questionnaire
Nora Fayed1, Alarcos Cieza, Jerome Bickenbach
1School of Rehabilitation Science, McMaster University, Hamilton, Canada.
Insights
This study highlights challenges in linking child health instruments to the International Classification of Functioning, Disability and Health Children and Youth (ICF-CY). Researchers must consider assessment knowledge, child behavior, linking perspective, and item purpose for accurate ICF-CY implementation.
Area of Science:
- Pediatrics
- Rehabilitation Medicine
- Disability Studies
Background:
- The International Classification of Functioning, Disability and Health Children and Youth (ICF-CY) is a derived classification of the ICF, enabling child health and disability research.
- Limited literature discusses challenges in linking ICF-CY to child health instruments.
Purpose of the Study:
- To explore challenges in linking child health instruments to the ICF-CY.
- To apply linking rules and new insights to a child-specific instrument, the Child Health Questionnaire.
Main Methods:
- Utilized the Child Health Questionnaire as a case study for linking to the ICF-CY.
- Applied existing linking rules and new reflections on the linking process.
Main Results:
- Identified the necessity of child health assessment knowledge for effective linking.
- Highlighted difficulties in linking child behavior information.
- Emphasized the importance of clarifying the linking perspective (child, parent, family).
- Stressed the need to consider item purpose before linking to ICF-CY, regardless of item simplicity.
- Proposed a new abbreviation, not-defined-development (nd-dv), for items assessing overall child development.
Conclusions:
- Linking child health instruments to the ICF-CY requires careful consideration of multiple factors.
- Accurate implementation of ICF-CY necessitates domain-specific knowledge and methodological clarity.
- The proposed nd-dv abbreviation may aid in standardizing the classification of child development items.
Abstract:
The publication of the International Classification of Disability, Functioning and Health Children and Youth (ICF-CY) version as a derived classification of the ICF has enabled child health and disability researchers to implement the classification into their work. There is little discussion available in the literature specifically about challenges associated with connecting ICF-CY to child health instruments. The objective of this study was to apply new reflections about linking and previous linking rules to a child-specific instrument using the Child Health Questionnaire as an example. We discovered the importance of knowledge in child health assessment as a linking requisite, issues with linking information about child behavior, the importance of clarifying the vantage point from which one is linking (e.g., child, parent, or family), and the fact that one should carefully consider the true purpose or targets of items before linking them to the ICF-CY, irrespective of the simple language used in the item. Finally, we propose the use of a new not-defined abbreviation to denote items that assess overall child development: not-defined-development (nd-dv).
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