Illustrating child-specific linking issues using the Child Health Questionnaire

Nora Fayed1, Alarcos Cieza, Jerome Bickenbach

  • 1School of Rehabilitation Science, McMaster University, Hamilton, Canada.

Insights

This study highlights challenges in linking child health instruments to the International Classification of Functioning, Disability and Health Children and Youth (ICF-CY). Researchers must consider assessment knowledge, child behavior, linking perspective, and item purpose for accurate ICF-CY implementation.

Area of Science:

  • Pediatrics
  • Rehabilitation Medicine
  • Disability Studies

Background:

  • The International Classification of Functioning, Disability and Health Children and Youth (ICF-CY) is a derived classification of the ICF, enabling child health and disability research.
  • Limited literature discusses challenges in linking ICF-CY to child health instruments.

Purpose of the Study:

  • To explore challenges in linking child health instruments to the ICF-CY.
  • To apply linking rules and new insights to a child-specific instrument, the Child Health Questionnaire.

Main Methods:

  • Utilized the Child Health Questionnaire as a case study for linking to the ICF-CY.
  • Applied existing linking rules and new reflections on the linking process.

Main Results:

  • Identified the necessity of child health assessment knowledge for effective linking.
  • Highlighted difficulties in linking child behavior information.
  • Emphasized the importance of clarifying the linking perspective (child, parent, family).
  • Stressed the need to consider item purpose before linking to ICF-CY, regardless of item simplicity.
  • Proposed a new abbreviation, not-defined-development (nd-dv), for items assessing overall child development.

Conclusions:

  • Linking child health instruments to the ICF-CY requires careful consideration of multiple factors.
  • Accurate implementation of ICF-CY necessitates domain-specific knowledge and methodological clarity.
  • The proposed nd-dv abbreviation may aid in standardizing the classification of child development items.

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