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Testing the transition preparation training program: A randomized controlled trial.

Cecily L Betz1, Kathryn Smith, Kristy Macias

  • 1USC Center of Excellence in Developmental Disabilities, Childrens Hospital Los Angeles, Department of Pediatrics, University of Southern California, Keck School of Medicine, Los Angeles, California, United States of America.

International Journal of Child and Adolescent Health
|January 10, 2012
PubMed
Summary

Transition Preparation Training (TPT) did not significantly improve well-being or self-care skills in adolescents with spina bifida (SB). The cognitive-behavioral program showed no added benefit over standard SB management alone.

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Area of Science:

  • Pediatric Health
  • Behavioral Science
  • Chronic Condition Management

Background:

  • Adolescents with spina bifida (SB) require specialized care and support during their transition to adulthood.
  • Effective transition planning is crucial for optimizing health outcomes and quality of life for young adults with SB.
  • Cognitive-behavioral interventions may offer a supportive framework for managing the complexities of chronic health conditions during adolescence.

Purpose of the Study:

  • To evaluate the effectiveness of Transition Preparation Training (TPT), a cognitive-behavioral program, when added to standard spina bifida (SB) management.
  • To compare health care transition outcomes in adolescents with SB receiving TPT plus SB management versus those receiving only SB management.
  • To assess the impact of TPT on subjective well-being, role mastery, and self-care practices in adolescents with SB.

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Main Methods:

  • A prospective controlled trial was conducted with 65 adolescents with SB at Childrens Hospital Los Angeles.
  • Participants were divided into two groups: one receiving TPT in addition to SB management, and a control group receiving only SB management.
  • Key outcome measures included subjective well-being (PARS III), role mastery (CLSS), and self-care practices (DSCPI-90©).

Main Results:

  • No statistically significant differences were observed between the TPT group and the control group regarding treatment effects or treatment-follow-up interactions.
  • The TPT intervention did not lead to substantial changes in subjective well-being, role mastery, or self-care practices compared to standard care.
  • The study found no evidence that the cognitive-behavioral program enhanced outcomes for adolescents with spina bifida.

Conclusions:

  • The Transition Preparation Training (TPT) program, as implemented, did not demonstrate added benefit to standard spina bifida (SB) management for improving adolescent outcomes.
  • Further research may be needed to explore alternative or modified interventions to support health care transitions for adolescents with SB.
  • Current findings suggest that standard SB management alone may be as effective as adding TPT for this population.