Social interaction experiences of adults with Moebius Syndrome: a focus group
Kathleen R Bogart1, Linda Tickle-Degnen, Matthew S Joffe
1Tufts University, Medford, MA, USA. kathleen.bogart@tufts.edu
Abstract:
This focus group study explored the social interaction experiences and strategies of 12 adults with Moebius Syndrome, a rare congenital condition characterized by facial paralysis. Content analysis revealed five themes of social functioning: social engagement/disengagement; resilience/sensitivity; social support/stigma; being understood/misunderstood; and public awareness/lack of awareness of Moebius Syndrome. Participants used compensatory expressive strategies such as vocal tone, gestures, and humor. The combination of being unable to express oneself with the face, having a facial difference, and having a rare disease is particularly stigmatizing. Increasing public awareness and developing social skills programs for people with facial paralysis could facilitate social functioning.
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