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Children's experiences of participation in the cleft lip and palate care pathway

Melanie Hall1, Barry Gibson, Allison James

  • 1Academic Unit of Oral Health and Development, School of Clinical Dentistry, Claremont Crescent, Sheffield, UK. melanie.hall@sheffield.ac.uk

International Journal of Paediatric Dentistry
|February 2, 2012
PubMed

Insights

Children actively participate in cleft lip and palate care decisions, taking on varying roles throughout their treatment journey. This highlights their significant contribution to their own healthcare choices.

Area of Science:

  • Pediatric Healthcare
  • Qualitative Research
  • Patient Experience

Background:

  • Cleft lip and palate care requires a multidisciplinary approach.
  • Understanding the child's perspective is crucial for effective treatment.

Purpose of the Study:

  • To explore children's views on their involvement in the cleft lip and palate care pathway.
  • To understand how children participate in treatment decisions.

Main Methods:

  • Qualitative study using child-centred interviews with participatory activities.
  • Two interviews conducted with 17 children (8-17 years) with cleft lip and palate.
  • Interviews covered general life stories and specific aspects of the condition and treatment.

Main Results:

  • Children's participation in decision-making varied, ranging from active to passive roles.
  • Patients occupied different roles throughout the care pathway, demonstrating dynamic participation.
  • Insights into the interaction between young patients, families, and clinicians in treatment decisions were revealed.

Conclusions:

  • Young patients play a vital role in their treatment choices.
  • Findings support the importance of incorporating children's perspectives in cleft lip and palate care.
  • The study offers valuable insights into shared decision-making in pediatric healthcare.
Abstract

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