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Concurrent care for the medically complex child: lessons of implementation
Elissa G Miller1, Gwenn Laragione, Tammy I Kang
1Pediatric Advanced Care Team, The Children's Hospital of Philadelphia.
Insights
Pediatric patients can now receive hospice and disease-directed therapy simultaneously. This concurrent care model presents five key implementation challenges, as shown in case studies of medically complex children.
Area of Science:
- Pediatric Palliative Care
- Oncology
- Healthcare Management
Background:
- Palliative care advocacy has led to expanded access to hospice services for pediatric patients.
- Concurrent care allows children to receive both hospice and disease-directed treatments simultaneously.
- This policy shift aims to improve quality of life and symptom management during serious illness.
Observation:
- Implementation of concurrent care for pediatric patients presents unique challenges.
- Case studies highlight five distinct types of difficulties encountered by healthcare teams.
- Medically complex pediatric patients were the focus of these illustrative case studies.
Findings:
- Concurrent care implementation involves logistical, clinical, and communication hurdles.
- Specific challenges include coordinating care between multiple specialists and ensuring consistent communication.
- Navigating insurance and resource allocation for simultaneous treatments requires careful planning.
Implications:
- Addressing these challenges is crucial for successful concurrent care implementation.
- Improved care coordination can enhance the quality of life for pediatric patients with serious illnesses.
- Further research and system-level adjustments are needed to optimize concurrent care delivery.
Abstract:
After years of the palliative care community calling for more open access to hospice services, pediatric patients are now eligible to receive simultaneous hospice services and disease-directed therapy. We report on five types of challenges that our team has experienced when implementing concurrent care, illustrated through case studies of three medically complex pediatric patients.
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