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Concurrent care for the medically complex child: lessons of implementation

Elissa G Miller1, Gwenn Laragione, Tammy I Kang

  • 1Pediatric Advanced Care Team, The Children's Hospital of Philadelphia.

Insights

Pediatric patients can now receive hospice and disease-directed therapy simultaneously. This concurrent care model presents five key implementation challenges, as shown in case studies of medically complex children.

Area of Science:

  • Pediatric Palliative Care
  • Oncology
  • Healthcare Management

Background:

  • Palliative care advocacy has led to expanded access to hospice services for pediatric patients.
  • Concurrent care allows children to receive both hospice and disease-directed treatments simultaneously.
  • This policy shift aims to improve quality of life and symptom management during serious illness.

Observation:

  • Implementation of concurrent care for pediatric patients presents unique challenges.
  • Case studies highlight five distinct types of difficulties encountered by healthcare teams.
  • Medically complex pediatric patients were the focus of these illustrative case studies.

Findings:

  • Concurrent care implementation involves logistical, clinical, and communication hurdles.
  • Specific challenges include coordinating care between multiple specialists and ensuring consistent communication.
  • Navigating insurance and resource allocation for simultaneous treatments requires careful planning.

Implications:

  • Addressing these challenges is crucial for successful concurrent care implementation.
  • Improved care coordination can enhance the quality of life for pediatric patients with serious illnesses.
  • Further research and system-level adjustments are needed to optimize concurrent care delivery.

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